Patient & Family Services
Whether you're a Person with ALS, a family member or friend of someone living with ALS, or a caring soul who wants to know more about the disease and what you can do to help, we're here to help. The Tennessee Chapter offers a full range of services to guide and assist you as you learn more about ALS.
These programs and services are available free of charge to ALS patients and their families who are registered Chapter Members. Register today and an ALS Tennessee Care Services Coordinator will be in touch to address your needs.
Our staff is always happy to answer any questions you might have. Please don't hesitate to Contact Us.
2019 PROGRAMS & SERVICES
Care Service Coordinators are available to our PALS and families for home visit appointments. Visits are arranged at initial contact with our office, and periodically throughout the relationship with the ALS Association. Home visits are a great opportunity for our Care Services Coordinators to assess needs and supports, and offer assistance with resources.
The Chapter has dedicated support groups operating in 5 different parts of Tennessee for people living with ALS &/or their Caregivers. Click Here to find the Support Group near you!
Careservices Monthly Newsletter
This publication is sent to all of our patients statewide each
month, via mail or email. The newsletter includes information about research,
programs, and facts for families living with ALS, as well as announcements from
the Tennessee Chapter of the ALS Association.
Equipment Program & Loan Closet
The Chapter maintains an inventory of gently used durable medical equipment and assistive devices that can be loaned to registered Chapter members at no cost. We also have limited financial assistance available to our patients for the purchase of needed medical equipment.
The Chapter has working relationships with Speech Pathologists and other proffesionals across the state who are available to assist with ongoing adjustments to communication devices. These professionals can also make recommendations for assistive devices to enhance communication. We also maintain a limited collection of assistive communication devices in our Loan Closet.
The Care Connection program is
simple: it’s a network of volunteers from the community – friends, neighbors,
members of community organizations like your church, or other service groups –
that provide help for the person with ALS and his or her family, and often give
the caregiver a break from their day-to-day responsibilities. Click here to find more information.
The Chapter supports the ALS Association’s research enterprise, the largest effort in scope and diversity of projects ever undertaken to unlock the mysteries of ALS. During the last decade, ALSA has invested $25 million in research— more research funding than any other ALS organization. We collect data from people living with ALS in an effort to create a Chapter Registry.
The Chapter supports the advocacy and public policy activities conducted by the ALS Association from its office in Washington, DC. We help promote local awareness and organize letter-writing campaigns to show support for legislation that will ultimately help ALS patients.