ALS Ice Bucket Challenge Progress

 

Patient & Family Services

Whether you're a Person with ALS, a family member or friend of someone living with ALS, or a caring soul who wants to know more about the disease and what you can do to help, we're here to help. The Tennessee Chapter offers a full range of services to guide and assist you as you learn more about ALS.

These programs and services are available free of charge to ALS patients and their families who are registered Chapter Members. Register today and an ALS Tennessee Care Services Coordinator will be in touch to address your needs.

Our staff is always happy to answer any questions you might have. Please don't hesitate to Contact Us.

PROGRAMS & SERVICES

Care Services Coordinators
Our Care Services Coordinators are available to people living with ALS and their families, as well as the general public, to provide education, support and programming. The Coordinators are able to assist with navigating the health care system and finding specialized ALS care, connecting with Chapter and community agency programs, insurance and disability, advocacy & research issues, emotional support and coping- anything related to their ALS diagnosis. Care Services Coodinators are available via home visits (currently offered virtually due to the COVID-19 pandemic), in the clinics that we partner with, or by telephone, email or virtual platforms.

Support Groups
The Chapter has dedicated support groups operating in different parts of Tennessee for people living with ALS &/or their Caregivers. These are wonderful opportunities for presentations from community professionals and to learn from the experiences of others living with ALS. Current Support Groups are being held virtually.

Monthly Patient Newsletter
This publication is sent to all of our patients statewide each month. The newsletter includes information about research, advocacy, programs, and facts for families living with ALS, as well as announcements from the Tennessee Chapter of the ALS Association. 

Equipment Program & Loan Closet
The Chapter maintains an inventory of gently used durable medical equipment and assistive devices that can be loaned to registered Chapter members at no cost. We also have limited financial assistance available to our patients for the purchase of needed medical equipment.

Communication Program
Our Chapter has working relationships with Speech & Language Pathologists and other professionals across the state who are available to assist with ongoing adjustments to communication devices. These professionals can also make recommendations for assistive devices to enhance communication. We also mantain a colletion of assistive communication devices in our Loan Closet. 

General Grant Program
In the inaugural year (2021) of the Chapter's General Grant Program, eligible Tennesseans with ALS can apply for a $500 grant to reimburse them for various ALS related expenses. This will provide assistance in areas that do not fit into the various program categories that we have previously offered. The program is a reimbursement program. Clients must submit an application and verification of diagnosis from their neurologist or clinic, and if approved, can submit paid receipts within 90 days for reimbursement. Please contact your Care Services Coordinator for questions.
Learn more about the General Grant Program and the products and services eligible for reimbursement here.

Care Connection 
The Care Connection program is simple: it’s a network of volunteers from the community – friends, neighbors, members of community organizations like your church, or other service groups – that provide help for the person with ALS and his or her family, and often give the caregiver a break from their day-to-day responsibilities. Click here to find more information.

Research
The Chapter supports the ALS Association’s research enterprise, the largest effort in scope and diversity of projects ever undertaken to unlock the mysteries of ALS. During the last decade, ALSA has invested $25 million in research— more research funding than any other ALS organization. We collect data from people living with ALS in an effort to create a Chapter Registry.

Advocacy
The Chapter supports the advocacy and public policy activities conducted by the ALS Association from its office in Washington, DC. We help promote local awareness and organize letter-writing campaigns to show support for legislation that will ultimately help ALS patients.

ALS Clinics
Our Chapter collaborates with ALS Clinics across the state to help ensure that people living with ALS have access to specialized care. Our Care Services Coordinators are happy to discuss the benefits of attending an ALS Clinic and help you locate one to best meet your needs.

We are proud to announce that the ALS Clinic of the MidSouth in Memphis recently earned certification from the ALS Association as a Recognized Treatment Center.  We have partnered with the ALS Clinic of the MidSouth in providing multidisciplinary ALS care since 2016.

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Click Here to find out more information on The Partnership for Prescription Assistance.