Public Policy and Education

Public Policy is an important part of the focus of The ALS Association Tennessee Chapter.  We are proud to join with our families, supporters, and volunteers to advocate for the needs of people with ALS and their families. 

National Advocacy

Every May, The ALS Association holds The National ALS Advocacy Day & Public Policy Conference in Washington, D.C.  Each year we bring a delegation of people living with ALS, caregivers and anyone interested in advocating for ALS living in Tennessee. We meet with every legislator representing our service area in our state to educate them about ALS and urge their support for The ALS Association's Top Public Policy Priorities for that year. This Conference is open to anyone who is willing and able to attend. Click here to Learn More About National ALS Advocacy Day.

State Advocacy

Our Chapter also conducts advocacy efforts on the state level. We work with people with ALS, their caregivers, families, and friends to stay focused on the local issues impacting their lives. Every year we host our Annual Local Advocacy Day on the Hill in Nashville. Local Advocacy day is the ALS community’s opportunity to join together in our state’s capitol and make a difference in the fight against ALS. ALS affects not only the patient, but our community and this is the time when the state of Tennessee can come together. We make visits with our local legislators on a regular basis to make sure they are educated about what ALS is and the impacts of the disease.

  • Provide The Chapter with your input on issues regarding advocacy.
  • Sign up to Become an ALS Advocate below. This will insure you will be kept informed on the issues and will give you notice as to when, why, and how to get in touch with your representatives.
  • Volunteer to accompany public policy members to the offices of or meetings with state and federal representative in order to address ALS issues.
  • Volunteer to work on advocacy projects at area Walks to Defeat ALS®
  • If you are hosting a third-party event for The ALS Association, be sure to include advocacy and education as a part of your event.

For more information on how to get involved in Advocacy efforts contact, Ashlee Moon, Communications & Public Policy Manager, ashlee.moon@alstn.org.

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Become an Advocate

Your Voice Counts!

An ALS Association Advocate is a foot soldier in the battle to defeat ALS. An ALS Association Advocate is someone who is passionate about getting involved with government at all levels to draw awareness and resources to the people affected by this disease. An ALS Association Advocate is someone who is willing step outside of their comfort zone to effect real change in the way our government responds to the needs of the ALS community. Even if you aren't a friend relative, supporter or business associate of a legislator, you can open doors through your outreach. As an ALS Association Advocate, you can help change the laws and policies that affect thousands of persons with ALS and their families.