Patient & Family Services
Whether you're a Person with ALS, a family member or friend of someone living with ALS, or a caring soul who wants to know more about the disease and what you can do to help, we're here to help. The Tennessee Chapter offers a full range of services to guide and assist you as you learn more about ALS.
These programs and services are available free of charge to ALS patients and their families who are registered Chapter Members. Register today and an ALS Tennessee Care Services Coordinator will be in touch to address your needs.
Our staff is always happy to answer any questions you might have. Please don't hesitate to Contact Us.
PROGRAMS & SERVICES
Care Service Coordinators are available to our PALS and families for home visit appointments. Visits are arranged at initial contact with our office, and available as needed throughout the relationship with the ALS Association. Home visits are a great opportunity for our Care Services Coordinators to assess needs and supports, and offer assistance with resources.
The Chapter has dedicated support groups operating in 5 different parts of Tennessee for people living with ALS &/or their Caregivers. Click Here to find the Support Group near you!
Careservices Monthly Newsletter
This publication is sent to all of our patients statewide each
month, via mail or email. The newsletter includes information about research,
programs, and facts for families living with ALS, as well as announcements from
the Tennessee Chapter of the ALS Association.
Equipment Program & Loan Closet
The Chapter maintains an inventory of gently used durable medical equipment and assistive devices that can be loaned to registered Chapter members at no cost. We also have limited financial assistance available to our patients for the purchase of needed medical equipment.
Chapter is able to discuss both high and low tech options available to clients
experiencing challenges with their speech. We maintain a limited
collection of assistive communication devices in our Loan Closet. The
Chapter has working relationships with Speech Pathologists and other
professionals across the state who are available to educate and train
clients on the use of these loaner devices.
The Care Connection program is
simple: it’s a network of volunteers from the community – friends, neighbors,
members of community organizations like your church, or other service groups –
that provide help for the person with ALS and his or her family, and often give
the caregiver a break from their day-to-day responsibilities. Click here to find more information.
The Chapter supports the ALS Association’s research enterprise, the largest effort in scope and diversity of projects ever undertaken to unlock the mysteries of ALS. During the last decade, ALSA has invested $25 million in research— more research funding than any other ALS organization. We collect data from people living with ALS in an effort to create a Chapter Registry.
The Chapter supports the advocacy and public policy activities conducted by the ALS Association from its office in Washington, DC. We help promote local awareness and organize letter-writing campaigns to show support for legislation that will ultimately help ALS patients.
ALS Clinics Our Chapter collaborates with ALS Clinics across the state
to help ensure that people living with ALS have access to specialized
care. Our Care Services Coordinators are happy to discuss the benefits of
attending an ALS Clinic and help you to locate one to best meet your needs.
We are proud to announce that the ALS Clinic of the MidSouth
in Memphis recently earned certification from the ALS Association as a
Recognized Treatment Center. We have partnered with the ALS Clinic of the
MidSouth in providing multidisciplinary ALS care for over three years.